May 1, 2018

We made it home to Utah one week ago tonight.  It's been so good to be back. Sarah is active and happy, and honestly if it weren't for her darling bald head and missing eyebrows you wouldn't know she was sick.

She was able to have her central line removed Friday, which has helped her feel more normal. Central lines can't get wet so she has been having bed baths since November....she loves taking showers now.  She just stands there as the warm water falls on her.  Every time I ask her if she's ready to get out she just smiles and says "no".

It's been a harder adjustment, emotionally, than I thought it would be. I think it's because all we do now is wait. We need to wait about five weeks before Sarah can have an MRI...radiation can make an MRI light up and give a false reading if we do it too soon.  My emotions change quickly from positive and hopeful to despair and gloom.  Nathan, the kids, and my parents are helping me more than they know....they are my rock and help me believe in good things to come.

I honestly don't know how this is going to turn out and that is really scary.  We are here altogether, living real life, and I'm terrified by the possibility that it could only be temporary.  But I remind myself that this is all part of life and part of Heavenly Father's plan.  We are in His hands, and there is no better place to be.  We put our trust in Him.  We know that He is with us, He loves us, and with Him we can do all things.

Please, please....pray for Sarah.  Pray for a clean MRI, pray for successful treatment....pray for another miracle.

Comments

  1. TrishaMay 2, 2018 at 8:09 AM

    Praying as always for you guys and sweet Sarah. So glad that you are home for now and can enjoy the time. But I understand that waiting time- we are two months out from any treatment cause of our delays and it's killing us to be in survival mode this whole time with no answers.
    Good luck, lots of love and prayers! Your Heavenly Father knows exactly what you are going through and is there for you.

    ReplyDelete
  2. CarenMay 2, 2018 at 9:53 AM

    I'm so glad you are home!!! I will be praying, praying, praying!!

    ReplyDelete

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