March 24, 2018

Week two of radiation finished!  Monday morning we were about to walk out the door of our place to leave for her appointment when Camden found a cracker and shared it with Sarah.  I heard her take a bite and ran over to fish the bite out of her mouth.  I got it out but was nervous they would put off treatment for a few hours because of it.  Instead of putting it off and making her be NPO for another six hours they canceled her appointment for the day.  It is too risky to put her to sleep if she had any food.  I was pretty mad at myself the rest of that day.  We have since made extra sure there is nothing either of the kids could find in the mornings before her appointments.

Tuesday after Sarah's appointment we went on a drive and she was SO excited to see a Chick Fil A.  She loves Chick Fil A!  Her appetite is back and she is doing really well.

Thursday morning Sarah had an MRI at Seattle Children's Hospital, then we went straight to her radiation appointment.  She was pretty tired after being put to sleep twice in one day.  Ideally they wouldn't put her to sleep twice in one day, but with the cracker incident on Monday we didn't really have other options.

Yesterday we had our weekly check in with the doctor at the proton center.  I wasn't planning on knowing much from the MRI Sarah had because it was just something they needed to make sure the map of Sarah's brain was still accurate for radiation.  The doctor walked in with a big smile and said, "Good MRI!!"  I said, "What do you mean?" He told me there was no sign of tumor growth.  I didn't really know how to register that....we have never had good results from an MRI other than right after surgery.  We feel so blessed. We know Heavenly Father is very aware of her and directly involved in helping her.  We do believe in miracles.  We know Sarah still has a ways to go but we feel confident and know she is in God's hands.




Comments

Post a Comment

Popular posts from this blog

September 8, 2021

  Four years ago today our life was turned upside down. I never imagined this life would be ours….I don’t think anyone ever thinks it will happen to them. I remember when my sweet aunt was fighting cancer. Hannah cried for Marilyn, so worried about her. “Do kids ever get cancer, mom?” …..”Yes, they do. But it’s not something you need to worry about.” Little did I know, cancer would upend everything in our little world.  After three brain surgeries, months of grueling chemo and radiation, Sarah is healthy and strong. She’s the strongest person I know. But just because the cancer is gone, doesn’t mean everything is better now. Nothing comes easy for Sarah (except for loving others—she loves fiercely.) She works hard for everything-even the simple things most people take for granted. I am amazed by her strength, courage, and determination.  It’s hard to say I’m grateful for it after at all she’s been through, and the difficulties she faces now….but I am. I am grateful. It’s ...
Read more

Sarah's Story

On Wednesday September 6, 2017 Sarah woke up and threw up one time.  She was fine the rest of the day and we played outside.  That evening while Hannah, Camden, Sarah, and I were playing outside Sarah starting acting weird.  She laid her head on the cement and tried to sleep so I took all the kids in for showers and bed.  She fell asleep waiting for the shower.  She threw up, then fell back asleep.  I assumed she caught something from nursery. Thursday she was still sick.  Tired and throwing up, but nothing that had me overly worried.   Friday September 8, I thought Sarah was doing better.   She woke up and came in the kitchen asking me for a  sippy.  She hadn't had many wet diapers and I was concerned she was dehydrated   so  I texted Jana, who works at my doctors office, to ask for advice.    She said if Sarah didn't seem better by 3:00 to bring her down to the office for a strep test.  Sara...
Read more

February 4, 2018

Image
It has been an eventful week for Miss Sarah! Last Monday she started chemo.  Her dressing was removed to prevent skin burns from Thiotepa.  3x daily baths begin.   Tuesday, more chemo and more baths.  During one of her baths I notice her line looks like it’s come out slightly.  They do a chest x-ray…it has come out a little, but it is still in just far enough.   Wednesday we give Sarah her first bath of the day and the line has come out at least two inches.  We hurry and put her gauze wrap on to hold what is left of the line in place.  Another chest x-ray confirms the line is out of place.  The gauze comes off for her next bath and the line just falls out.  She needs a new line placed before her counts drop but after the crazy skin burning chemo has been out of her system for 48 hours.  That evening I realized she would be going in for surgery the next day and hadn’t had a priesthood blessing.  I text the Branch Pr...
Read more