March 11, 2018

It has been a wonderful two weeks since Sarah's surgery!  She loves being with Hannah and Camden outside of the hospital.  Aside from the scar on her cute little bald head, she looks like a healthy little girl.  She runs around the house, climbs the stairs, plays hide and seek and loves life.

Nathan drove Sarah, Camden, and I to Seattle last week.  Before we left we stopped to get gas and ran into a dear friend whose encouraging words were straight from heaven and just what we needed.  We left early in the morning and drove all day.  When we made it Camden said, "That wasn't too long." Just a few of many, many tender mercies!

The first day there she had an appointment at Seattle Children's Hospital.  We will be meeting with the doctor there weekly while she undergoes radiation.  We spent the rest of the day exploring and getting familiar with our temporary home.  The next day we met our radiation team at the Seattle Cancer Care Alliance.  We discussed the treatment plan and everything that it entails.  Then they put her to sleep while did some imaging and made her mask. (I will put a link at the bottom with more information).  After her appointment we headed home to be with Hannah while the team mapped Sarah's tumor.

On the way home I noticed what I thought was a chipped tooth in Sarah's mouth.  I texted a picture to our dentist and he said it wasn't a chipped tooth.  Chemo wreaked havoc and Sarah had many cavities.  Primary Children's Dentistry was able to see her on Monday.  They said she needed surgery.  "The waiting list is usually months out....but we happen to have a spot available for her tomorrow."  We see Heavenly Father's hand in our lives every day.  We had only a small window of time before we left the state and really wanted to fix it so she wasn't in pain, and it worked out perfectly.

Friday night Sarah went to Make A Wish and LOVED it.  She wished to go to Disneyland.  Every night Hannah prays for Sarah to get better so she can go to Disneyland and meet Moana.

Sarah starts treatment on Tuesday.  We started the drive for Seattle today.  We are so excited to start treatment.  We are so grateful for such an amazing team taking care of her.  We really miss our friends back at Primary Children's and we are excited to meet new friends in Seattle.

Thank you for the love and prayers!!!

https://www.sccaprotontherapy.com/gallery/videos/mask-making

                                       

Comments

  1. UnknownMarch 18, 2018 at 11:15 AM

    I have been friends with your mother in law for many years and my son and Tanner were childhood friends. I wanted you to know that I read your blog every Sunday and your faith and strength have been such an example to me. You may never know how many lives your families experience are being strengthened as we follow you in your journey. Your faith is helping to strengthen mine. Reading your words always reminds me that I am not alone in my own journey and need to rely on my faith. Thanks for sharing.💗

    ReplyDelete

Post a Comment

Popular posts from this blog

September 8, 2021

  Four years ago today our life was turned upside down. I never imagined this life would be ours….I don’t think anyone ever thinks it will happen to them. I remember when my sweet aunt was fighting cancer. Hannah cried for Marilyn, so worried about her. “Do kids ever get cancer, mom?” …..”Yes, they do. But it’s not something you need to worry about.” Little did I know, cancer would upend everything in our little world.  After three brain surgeries, months of grueling chemo and radiation, Sarah is healthy and strong. She’s the strongest person I know. But just because the cancer is gone, doesn’t mean everything is better now. Nothing comes easy for Sarah (except for loving others—she loves fiercely.) She works hard for everything-even the simple things most people take for granted. I am amazed by her strength, courage, and determination.  It’s hard to say I’m grateful for it after at all she’s been through, and the difficulties she faces now….but I am. I am grateful. It’s ...
Read more

Sarah's Story

On Wednesday September 6, 2017 Sarah woke up and threw up one time.  She was fine the rest of the day and we played outside.  That evening while Hannah, Camden, Sarah, and I were playing outside Sarah starting acting weird.  She laid her head on the cement and tried to sleep so I took all the kids in for showers and bed.  She fell asleep waiting for the shower.  She threw up, then fell back asleep.  I assumed she caught something from nursery. Thursday she was still sick.  Tired and throwing up, but nothing that had me overly worried.   Friday September 8, I thought Sarah was doing better.   She woke up and came in the kitchen asking me for a  sippy.  She hadn't had many wet diapers and I was concerned she was dehydrated   so  I texted Jana, who works at my doctors office, to ask for advice.    She said if Sarah didn't seem better by 3:00 to bring her down to the office for a strep test.  Sara...
Read more

February 4, 2018

Image
It has been an eventful week for Miss Sarah! Last Monday she started chemo.  Her dressing was removed to prevent skin burns from Thiotepa.  3x daily baths begin.   Tuesday, more chemo and more baths.  During one of her baths I notice her line looks like it’s come out slightly.  They do a chest x-ray…it has come out a little, but it is still in just far enough.   Wednesday we give Sarah her first bath of the day and the line has come out at least two inches.  We hurry and put her gauze wrap on to hold what is left of the line in place.  Another chest x-ray confirms the line is out of place.  The gauze comes off for her next bath and the line just falls out.  She needs a new line placed before her counts drop but after the crazy skin burning chemo has been out of her system for 48 hours.  That evening I realized she would be going in for surgery the next day and hadn’t had a priesthood blessing.  I text the Branch Pr...
Read more