February 22, 2018

Nathan, Sarah and I left early this morning for the hospital.  I was hoping it was early enough that Camden and Hannah would sleep through it and not even know we left.  Hannah slept....but Camden didn't. He didn't want me to leave again.  He wakes up every morning, "Do you have to go back to the hospital?" Today he didn't pout or have a melt down, but he was broken hearted.  They are all so tired of this...tired of having a part time mom, tired of Sarah being sick and in pain, tired of being away from each other.

We got to the hospital and Sarah didn't even cry, she's so used to it now.  We had to wait a few hours for surgery, thankfully she slept through most of the wait.  The anesthesiologist brought her some medicine to help her relax so she wasn't scared to leave us.  It works super fast.  We gave her a hug, handed her to the doctor and watched as he carried her away.

Surgery was about five hours.  She has a team of amazing surgeons that have been with her from the beginning.  I'm amazed at what they do! They did an MRI after surgery to make sure they got everything, and it looked wonderful. We are feeling very blessed.  We know she has many angels watching over her.  Now we just wait and let her heal.  She should leave PICU tomorrow to go upstairs to our ICS home.  She is my hero!















Comments

Post a Comment

Popular posts from this blog

September 8, 2021

  Four years ago today our life was turned upside down. I never imagined this life would be ours….I don’t think anyone ever thinks it will happen to them. I remember when my sweet aunt was fighting cancer. Hannah cried for Marilyn, so worried about her. “Do kids ever get cancer, mom?” …..”Yes, they do. But it’s not something you need to worry about.” Little did I know, cancer would upend everything in our little world.  After three brain surgeries, months of grueling chemo and radiation, Sarah is healthy and strong. She’s the strongest person I know. But just because the cancer is gone, doesn’t mean everything is better now. Nothing comes easy for Sarah (except for loving others—she loves fiercely.) She works hard for everything-even the simple things most people take for granted. I am amazed by her strength, courage, and determination.  It’s hard to say I’m grateful for it after at all she’s been through, and the difficulties she faces now….but I am. I am grateful. It’s ...
Read more

Sarah's Story

On Wednesday September 6, 2017 Sarah woke up and threw up one time.  She was fine the rest of the day and we played outside.  That evening while Hannah, Camden, Sarah, and I were playing outside Sarah starting acting weird.  She laid her head on the cement and tried to sleep so I took all the kids in for showers and bed.  She fell asleep waiting for the shower.  She threw up, then fell back asleep.  I assumed she caught something from nursery. Thursday she was still sick.  Tired and throwing up, but nothing that had me overly worried.   Friday September 8, I thought Sarah was doing better.   She woke up and came in the kitchen asking me for a  sippy.  She hadn't had many wet diapers and I was concerned she was dehydrated   so  I texted Jana, who works at my doctors office, to ask for advice.    She said if Sarah didn't seem better by 3:00 to bring her down to the office for a strep test.  Sara...
Read more

February 4, 2018

Image
It has been an eventful week for Miss Sarah! Last Monday she started chemo.  Her dressing was removed to prevent skin burns from Thiotepa.  3x daily baths begin.   Tuesday, more chemo and more baths.  During one of her baths I notice her line looks like it’s come out slightly.  They do a chest x-ray…it has come out a little, but it is still in just far enough.   Wednesday we give Sarah her first bath of the day and the line has come out at least two inches.  We hurry and put her gauze wrap on to hold what is left of the line in place.  Another chest x-ray confirms the line is out of place.  The gauze comes off for her next bath and the line just falls out.  She needs a new line placed before her counts drop but after the crazy skin burning chemo has been out of her system for 48 hours.  That evening I realized she would be going in for surgery the next day and hadn’t had a priesthood blessing.  I text the Branch Pr...
Read more