Saving Sarah

May 30th....scan day.  Ever since I heard the date I've been filled with excitement, counting down days....but I've also been terrified of it.  Nathan and I woke up early and grabbed Sarah out of her bed to head to the hospital.  We checked in at 6:30, they examined her and put in an IV, then we walked back with her and I held her as they gave her medicine to put her to sleep.  Being in the room filled me with anxiety and dread, we have only ever had bad experiences from this room and it's hard to imagine the doctors giving us good news.  We kissed her goodbye and went to the waiting room. After Sarah's scan we took her on a drive around Salt Lake while we waited to meet with the doctors to go over results.  It was short lived though, because we were too anxious to get back.  We wanted to be there as soon as they knew anything.  When we saw our team of doctors they smiled and gave us the most wonderful news..."Sarah's scans are clean." We are ...

We made it home to Utah one week ago tonight.  It's been so good to be back. Sarah is active and happy, and honestly if it weren't for her darling bald head and missing eyebrows you wouldn't know she was sick. She was able to have her central line removed Friday, which has helped her feel more normal. Central lines can't get wet so she has been having bed baths since November....she loves taking showers now.  She just stands there as the warm water falls on her.  Every time I ask her if she's ready to get out she just smiles and says "no". It's been a harder adjustment, emotionally, than I thought it would be. I think it's because all we do now is wait. We need to wait about five weeks before Sarah can have an MRI...radiation can make an MRI light up and give a false reading if we do it too soon.  My emotions change quickly from positive and hopeful to despair and gloom.  Nathan, the kids, and my parents are helping me more than they know....th...